Clair Walton:’ I would like the truth to come out. I would like to know whether any of this could have been avoided .’ Photograph: Collect
Michelle Tolley, 53
Tolley received two blood transfusions in 1987 and 1991 following the birth of their own children. She now carries the hepatitis C virus.
During the 1990 s, she said, there was video coverage about viruses passed on through blood commodities.” I was already feeling severe fatigue. I led along to my GP. He said:’ Well, of course you have fatigue. You have four young children. What do you expect ?’
” When you are a young baby you rely a health professional. Apparently there were’ look back’ checks after that to identify those who might have been infected. They can’t have searched very far.
” I was finally diagnosed with hepatitis C in November 2015. The worst thought was that my family had to be checked. What if I had guided the virus on to their own children?
” These infections are like a ripple out through class. In some occurrences whole generations have been lost. Those responsible for this historic tragedy which has lasted decades must be identified. They must be held responsible and prosecuted if necessary.
” We have been given a death sentence without commit an offence. What was the cause of this bloody-minded mess?
Jason Evans, 29
Evans was four years old when “his fathers” croaked. His only living recall of him is meeting him on his death bunk and then accompanying his funeral.
His father, Jonathan, was diagnosed with haemophilia as a young child. He began using the clotting agent factor VIII to considered his bleeds in 1976.” He first tested positive for HIV in 1984 ,” Evans said.” He was not told about that, nonetheless, until the following year.
” He wasn’t told he had hepatitis C until the early 1990 s, despite the facts of the case that the chance of showing through point VIII was by then practically 100%. He died in 1993, aged 31.”
He had been treated with blood makes from the US.” A plenty of those American firms had UK bureaux and staff and sales crews in England. So those people could be called to the inquiry.
” The dose corporations have absolutely got away with this .” The firms’ current US directors should be called to explain what happened, Evans added.
” What was done to haemophiliacs in the 1970 s was totally avoidable had action been taken sooner. There’s no reason why that could not have been done before- decades before .”
Evans said his father knew he would die young.” But I have lots of dwelling videos … They knew he was dying so they took lots of depicts .”
Hirsch lost one of her twin sons, who had haemophilia. He was diagnosed aged three weeks in 1976 and expired at 35 years old. He left a partner of 12 years and a 10 -month-old baby.
Hirsch congregated her husband, Dan, in San Fransisco in the 1960 s. She lives in Highgate , north London and is the elder sister of the Liberal Democrat peer Lynne Featherstone.
” Both medical professionals and the Department of Health were engaged in a collusion of stillnes and they did not call out their feelings for many years ,” Hirsch said.” This led to long delays in go looking for safe alternative ways to find blood. That silence clamped us.
” We were made to feel as if we were to blame, we were treated like pariah. That seemed like a standard procedure. The sadnes and appalling need of attention can never be overstated. I was appalled when I was dealing with[ health officials] on behalf of my son’s clas. They were tumultuous. They looked at any financial assistance as kindnes. At this stage my son had only been dead for three weeks.
” This is our investigation, where we can ask all the questions we weren’t allowed to get out of our lips. We can finally hope that our inquest will look into all of the Department of Health’s dark corners .”
Anthony Ferrugia, 46
Ferrugia’s father, who had haemophilia and needed blood transfusions, died in 1986.
” My leader was one of three brethren. All were infected. My father-god had HIV, hepatitis B and hep C. One uncle was infected with Creutzfeldt-Jakob malady. All three expired ,” said Ferrugia, who is from St Neots in Cambridgeshire.
” My household were haemophiliacs. Some of my cousins have died. One developed cirrhosis of the liver from hepatitis C. It’s been 32 times implanting our dead and we haven’t finished yet.
” My father had five sons. I was 14 when he died at the age of 37. I was placed in care and didn’t see the rest of my brothers for 26 times because we were all separated. All of the brothers didn’t meet again until 2010.
” We would like approval and an admission of wrongdoing so that the public are aware of what’s happened. It’s been hidden away for far too long. We have been stigmatised with having HIV. Beings didn’t speak out. It has been covered up because of the scale of the disaster .”
Mark Ward, 49
Describing himself as a” severe haemophiliac “, Ward was diagnosed when he was three.
” From the first therapy the blood make was tainted and filthy. It was at Great Ormond Street hospital. They were saving “peoples lives” because I used to have nosebleeds.
” But they were also infecting me with viruses. I had hepatitis A, B and C, HIV, Epstein-Barr virus and many others. I used to bled all over my mother and they set her life at risk as well. I was told I had HIV in 1983 when I was 14. I have been living on borrowed time for many years.
” The nannies told their own families when they were on a hospital see. They screamed in the different regions of the NHS waiting room:’ Do you want to know Mark’s HIV develops? He’s positive.’
” We want the truth “re coming out”. We want the dominance of giant pharmaceutical companies over government to end. My life was deemed to be worth less than their profits. There were admonishings about these blood products as early as 1958.”
Chris Smith, 40
Smith was eight when “his fathers”, a serious haemophiliac, died.
” He was polluted in 1985 with HIV and hepatitis C and died the following year. They picked it up on a routine test and didn’t move to tell him. He left myself, an 18 -month-old child, and my mum.
” There was no one before him who had haemophilia in our house. It exactly showed. I have also lost my cousin. No one wanted to be associated with HIV because of the stigma attached to it. There were families at the time who had’ Aids scum’ spray painted on their dwellings. It was like a soiled secret.
” People used to say their father-god died in a vehicle crash or had cancer rather than admit their parent succumbed of Aids.
” The majority of this suffering could have been avoided. If they had acted earlier people might have been left with hepatitis C, but no one needed to get HIV or Aids which came later .”
” There needs to be some sort of accountability. There’s been no blame in any way. What we were able to all like to see is the truth .”